A Mother's Intuition
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|Posted on April 1, 2019 at 6:43 AM||comments (235)|
|Posted on June 14, 2018 at 6:17 AM||comments (13)|
All things are possible! My son is working at Shop-Rite independently. He started off with a job coach and now he is on his own. I'm so proud of him. Just a few days a week but amazing progress. With all of the awsome supports he is thriving and proud of himself and his own accomplishments. I'm not saying it is easy, but I am saying it is worth it.
|Posted on June 13, 2018 at 6:21 PM||comments (18)|
A quick shoutout to all of my followers. Just wanted to say "hello" and thank everyone for their kind words and support. Sometimes that is all you need to make someone else's day. You guys are awsome! Thanks again.
|Posted on June 13, 2018 at 5:53 PM||comments (18)|
|Posted on January 2, 2018 at 11:10 AM||comments (18)|
Now that winter break is over, the new year begins and my birthday approaching I become reflective as always. I guess almost like a mama bear in it's cave gazing at it's cubs. Yeah it's like that. Feeling very melancholy lately. Maybe even more so because of my ❤️ condition. So my son AJ was here for the entire break. As you all know, he lives in Woodbury because of his disabilities. What a mature young man he has become. Every morning he would bundle up and take our family dog for a walk with no questions asked. He intuitively knew it was too cold for me to be outside. He would take the laundry down without hesitation. Asked if I was ok and needed anything. Why is it important to let them go unconditionally and trust? So they return home with a sense of independence, understanding and maturity. So they can discover their wings and fly on their own. I miss him every day as I live an breathe with him in my heart. Looking back though, in hindsight, it was the best decision for us a family unit. For him to grow into an adult and be able to function in a society where being different isn't always accepted and extremely challenging. So today I pat myself on the back because he is becoming the young man I knew he could be. I am extremely grateful for all of his accomplishments big and small. He is seizure free, communicative, expresses his emotions, uses curse words appropriately and within context, (lol) has a great sense of humor, is compassionate, has empathy and is a loving person. He has a lot of more to accomplish but it's within his reach. God has his hand in everything and in everything there is God. Hope and faith keep you on your mark. Don't lose sight even when all seems imposssible. HAPPY NEW YEAR EVERYONE!
|Posted on December 6, 2017 at 8:12 PM||comments (14)|
If you are a special needs parent, please take the time to read this. Hey friends. Debating posting this because some things you can't wrap your head around or process. So this past Thursday, November 2nd while at a meeting in AJ's school I had a heart attack. Good news there was a nurse on staff and I had my two good friends that are my advocates with me. They kept me calm and got me help. Takotsubo Cardiomyopathy. Now what is that? Broken Heart Syndrome . Guess what people it does exist. I'm ok. I do not need stents but a defribulator which is being put in tomorrow. Why am I letting you guys know? I lost 120 pounds, watched what I ate, meditated and distressed the best way I could. I thought I was ok. I was not a candidate to be a cardiac patient. That day was like any other day and I had about enough of one person's bullshit and I paid a very heavy price. So my advice to all of you is that stress kills. Tell people off when necessary beating the shit out of them is optional. But don't do what I did. Statistics are that most ladies don't survive this. Love to all of you. Please be grateful for your family and friends. Always find time and tell them you love them. Hugs are the best medicine.❤
|Posted on August 25, 2017 at 4:35 PM||comments (20)|
Parenting is the hardest job in the world. Now with that being said, we always want what's best for them and want them to strive for more. My Michael was bullied very bad at the age of 8 years old. It changed him but made him stronger. He stopped playing football which he was so passionate about. At the time it really broke my heart but as a parent all I could do was support him and get him the help he needed. He had nightmares, tremors, scared to sleep alone and anxiety. Through the years he received the help he needed. He has now decided to try out for Massapequa Varsity. He is so out of his comfort zone and I am so dam proud of him. He has been pushing himself every day. He is making his own decisions. Why is this so important? Because Aspergers/Autism is not winning!!! I prayed every morning and afternoon for God to keep him safe, for his ego not to be crushed and for him not to give up on himself. Making the team is in God's hands. Well he is succeeding and determined for himself. That is the only thing that matters. He thanked me for the encouragement and support. That's all we can do. Let go and let God.
|Posted on June 13, 2017 at 8:19 AM||comments (13)|
My son Anthony 18 has has been wanting to upgrade to Xbox1 for a while and waiting patiently. Michael my youngest organized all of his games and old xbox for trade-ins. Michael asked if I could drive them to Gamestop. Michael went into the store started to explain to his disabled brother the process. How the stuff you turn back in becomes useable cash points on your card and you can put that towards your new Xbox1 console and other games. He had such patience with him. When we got home he asked how old he had to be his guardian and how difficult it was to change the guardianship papers when he was old enough? I never pushed the issue as a parent. I asked him if he was sure. He said he's my brother, he needs me, that's what I'm suppose to do. I get emotional just thinking about it. He's turning 16 in 6 days. What an awsome mature young man has become. Just when you think your doing it all wrong they surprise you. I'm grateful and my heart is full of joy.
|Posted on February 28, 2017 at 7:49 AM||comments (7)|
|Posted on February 24, 2017 at 12:25 AM||comments (17)|
I know I'm not alone in this. Special needs parents are always tired, anxious, worried, stressed and running on adrenaline. When people tell me I'm strong and that's why I have two sons with disabilities, I have to say it's bullshit. You are special and you only get what you can handle. More bullshit. That's because people don't know what to say. That's the truth. To be honest with you, I'm all about being positive but this life is really dam difficult. I'm so tired of making decisions, worrying about triggers and meltdowns and thinking for everyone that when it comes to myself I'm out of thoughts. That's why it's so important to take care of ourselves. Take time for self nurturing. My mind is my prison lately.
I'm really struggling with all of this lately. Now that we have this new Congress in the Whitehouse we never know what challenges they/he will add to our lives on a daily basis. Now we have to continue to fight even harder for services because it looks like disabled children are going to suffer the consequences of our new education system to be implemented along with services and trying to make cuts and changes to Medicaid. From my perspective being discriminated against because of disabilities. So instead of helping the less fortunate or the weak, Congress decided unprotect and give them less.
I'm not one for discussing politics but it is in disgraceful taste all that is being descriminated against and dividing us as a nation. So it is my duty to remain resistant and mindful of what is important and fight back. Our future children deserve so much more. We need to preserve democracy as we know it. All of this chaos, hate and divide really does hurt my heart and makes me emotional. I would really like to get feedback in knowing that I'm not alone. Which is how I feel most of the time.
We are all different, but should accept the differences with an open mind and heart. I would rather love and care for one another than hate. Peace and love to everyone.